Moving Past Stigma
Author: Micah Lim
Asking for help is not always easy. In an American society that values competence and
individualism, relying on others is often interpreted as a sign of weakness. Everyday life is
expected to be lived independently of others and success may seem like a path walked alone;
however, no matter how self-sufficient someone may seem, everyone needs help.
For neurological disorders, the social consequences are a pervasive barrier that keeps people
from seeking professional treatment due to stigma and fear of discrimination. It lowers the
demand for resources to treat neurological disorders and diminishes the representation of people
in need of care. For example, many less developed countries culturally hold a strong stigma
against Epilepsy, believing that the neurological disease is contagious or a sign of possession. In
India, a short seizure can result in a permanently revoked driver's license by law. The implication
of stigma leads to a much more economic and social burden to treatable diseases such as
epilepsy. Since many cultural perspectives see neurological disorders as weakness, it is most
important to dismantle misconceptions so that society may learn to accept and understand these
differences.
To act against neurological disorder stigma, multiple steps are needed to work on a large and
small scale:
1. First, political commitment towards public health efforts is necessary for funding
resources for treating people with neurological disorders and signing legislation that
protects their rights. By showing their support, community leaders and public health
officials can work to educate society through policy and influence.
2. Second, there needs to be a public and professional awareness for neurological disorders
with their needs identified so that society may accommodate them. Campaigns that target
both physicians and the public will tie expert knowledge to what is commonly believed
and trusted.
3. Lastly, stigma must be exposed for the public to realize and perspectives must be aligned
to consider the hardships people with neurological disorders have had to face. Creating
educational opportunities will be very important for people to receive a diagnosis.
At Plus One Foundation, it is incredibly important for us to work against the stigma individuals
face when seeking treatment for their neurological disorders. Not only do we enrich lives on an
individual scale, but we foster a community where people can recognize that they are not alone
in their struggles. Learn to listen and let people know that they are worth so much more than
their disorder